{"id":4,"date":"2022-11-09T14:55:07","date_gmt":"2022-11-09T14:55:07","guid":{"rendered":"https:\/\/wp.kcr.uky.edu\/cbioportal2\/?page_id=4"},"modified":"2025-09-02T15:39:02","modified_gmt":"2025-09-02T15:39:02","slug":"datadictionary","status":"publish","type":"page","link":"https:\/\/wp.kcr.uky.edu\/cbioportal\/","title":{"rendered":"KCR cBioPortal Data Dictionary"},"content":{"rendered":"\n<h2 class=\"wp-block-heading has-large-font-size\" style=\"font-style:normal;font-weight:700\">Data Dictionary<\/h2>\n\n\n\n<p class=\"has-small-font-size\">Demographic and clinical data are provided by the Kentucky Cancer Registry which is part of the National Cancer Institute\u2019s Surveillance, Epidemiology and End Results (SEER) Program and the Centers for Disease Control and Prevention National Program of Cancer Registries (NPCR) Program.<\/p>\n\n\n\n<figure class=\"wp-block-table is-style-regular\" style=\"font-size:14px\"><table><thead><tr><th>Field<\/th><th>Description<\/th><th>Reference<\/th><\/tr><\/thead><tbody><tr><td>Patient ID<\/td><td>Unique identifier for referring to a patient and diagnosis record with in cBioPortal (<a href=\"#cbioportal-patient-id\">see additional details below<\/a>).<\/td><td><\/td><\/tr><tr><td>Sample ID<\/td><td>Unique identifier for the sample.<\/td><td><\/td><\/tr><tr><td>Sex<\/td><td>Patient sex<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885270\/Sex\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Ethnicity<\/td><td>Patient ethnicity<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884786\/Spanish+Surname+or+Origin\" data-type=\"URL\" data-id=\"https:\/\/confluence.kcr.uky.edu\/display\/KAM\/Spanish+Origin\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Race<\/td><td>Patient race<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884782\/Race+1\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Diagnosis Year<\/td><td>Year of diagnosis extracted from the date of diagnosis<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885404\/Year+of+Diagnosis\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Diagnosis Age<\/td><td>Patient age at diagnosis<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884788\/Age+at+Diagnosis\" data-type=\"URL\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Topography Code<\/td><td>ICD-O topography code of anatomical site of primary diagnosis <\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884978\/Topography+Code+ICD-O\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Topography Description<\/td><td>ICD-O topography description of code for the anatomical site of primary diagnosis<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884978\/Topography+Code+ICD-O\" data-type=\"URL\" data-id=\"https:\/\/confluence.kcr.uky.edu\/pages\/viewpage.action?pageId=5748418\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Histology Code<\/td><td>ICD-O histological code of classification of tumor<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885004\/Histology+Histologic+Type+ICD-O-3\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Histology Description<\/td><td>ICD-O histological description for the histology code<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885004\/Histology+Histologic+Type+ICD-O-3\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Best Stage Group<\/td><td>Calculated value for stage. It is calculated from the CS derived stage or the pathologic and clinical TNM Stage Groups recorded for this case.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/887929\/2018+Best+Stage+Group\" data-type=\"link\" data-id=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/887929\/2018+Best+Stage+Group\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Behavior<\/td><td>Behavior of the tumor being reported.&nbsp;&nbsp;The fifth digit of the morphology code is the behavior code.&nbsp;<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885096\/Behavior+Code\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Laterality<\/td><td>Describes the involvement of one or both sides of paired organs in a primary diagnosis of cancer<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884806\/Laterality\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Recurrence Status<\/td><td>Identifies the type of first recurrence after a period of documented disease-free intermission or remission<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885709\/Type+of+First+Recurrence\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Marital Status at Diagnosis<\/td><td>Patient\u2019s marital status at the time of diagnosis for this tumor, if known.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884849\/Marital+Status+at+Diagnosis\" data-type=\"URL\" data-id=\"https:\/\/confluence.kcr.uky.edu\/display\/KAM\/Marital+Status+at+Diag\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Nodes Examined<\/td><td>Number of regional lymph nodes examined.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/892032\/Regional+lymph+Nodes+Examined\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Nodes Positive<\/td><td>Number of regional lymph nodes positive.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885503\/Regional+Lymph+Nodes+Positive\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Overall Survival Status<\/td><td>Patient overall survival status derived from vital status from the registry.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885679\/Vital+Status\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><br><br><a href=\"https:\/\/docs.cbioportal.org\/file-formats\/#clinical-patient-columns\" target=\"_blank\" rel=\"noreferrer noopener\">cBioPortal Official OS_STATUS<\/a><\/td><\/tr><tr><td>Primary Payer<\/td><td>Patient&#8217;s primary payer or insurance carrier at the time of initial admission.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884857\/Primary+Payer\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>SEER Site 1<\/td><td>Calculated diagnosis site using Topography and Histology Codes used by SEER.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/886047\/SEER+Site\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><br><br><a href=\"https:\/\/seer.cancer.gov\/siterecode\/icdo3_d01272003\/\" target=\"_blank\" rel=\"noreferrer noopener\">SEER Recode<\/a><\/td><\/tr><tr><td>SEER Super Site<\/td><td>Similar to SEER Site 1, except this is a larger site group assignment. For example, Lip and Tongue SEER Site 1 fall into the <strong>Oral Cavity and Pharynx<\/strong> SEER Super Site.<\/td><td><a href=\"https:\/\/seer.cancer.gov\/siterecode\/icdo3_d01272003\/\" target=\"_blank\" rel=\"noreferrer noopener\">SEER Recode<\/a><\/td><\/tr><tr><td>Site Group<\/td><td>Another cancer site designation used by the Kentucky Cancer Registry, calculated from the Topography and Histology Codes.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885775\/Case+Site+Code\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Survival Status<\/td><td>Describes the patient and tumor status at last contact.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884881\/Survival+Status\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Tobacco Status<\/td><td>Describes the patient&#8217;s tobacco use.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/889789\/Tobacco+Use+Smoking+Status\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Treatment Composite (All)<\/td><td>A summary of all therapy a patient received for a primary incidence of cancer, including first and subsequent courses, calculated from all therapy records in the cancer registry.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884960\/Tx+Composite+All\" data-type=\"URL\" data-id=\"https:\/\/confluence.kcr.uky.edu\/pages\/viewpage.action?pageId=5748752\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Treatment Composite (First)<\/td><td>A summary of all first course therapy a patient received for a primary incidence of cancer, calculated from all first course therapy records in the cancer registry.<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/885728\/Tx+Composite+First\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Tumor Size<\/td><td>Size measured on the surgical resection specimen<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/884974\/Tumor+Size+Summary\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><tr><td>Urban Rural<\/td><td>A code indicating the urban or rural status of the patient\u2019s address at diagnosis: 1-3 = Urban, 4-9 = Rural<\/td><td><a href=\"https:\/\/kcr-confluence.atlassian.net\/wiki\/spaces\/KAM\/pages\/887816\/Beale+Code+2013\" target=\"_blank\" rel=\"noreferrer noopener\">KCR Abstractors Manual<\/a><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<p class=\"has-small-font-size\">The data in cBioportal has been de-identified, but CRI can facilitate access to a rich set of additional data variables for cBioportal cohorts from either the cancer registry or other linked data sets. Please contact us for more information: <a href=\"https:\/\/redcap.uky.edu\/redcap\/surveys\/?s=PT79FME9MK\" data-type=\"URL\" data-id=\"https:\/\/redcap.uky.edu\/redcap\/surveys\/?s=PT79FME9MK\" target=\"_blank\" rel=\"noreferrer noopener\">CRISRF Data Request<\/a><\/p>\n\n\n\n<h5 class=\"wp-block-heading\" id=\"cbioportal-patient-id\">Notes on Patient ID and Sample ID<\/h5>\n\n\n\n<p class=\"has-small-font-size\">For many of the fields in cBioPortal we are able to control the display field name, however, we cannot control the field names&nbsp;&#8220;Patient ID\u201d and &#8220;Sample ID\u201d due to limitations of the cBioportal software. The record-level data in this cBioPortal instance is based on a patient\u2019s primary diagnosis of cancer (Patient ID) linked to a molecular variant report from a tissue sample related to that cancer diagnosis (Sample ID).&nbsp;For a single diagnosis record in the cancer registry, a patient could have multiple tissue samples and multiple primary cancer cases. In order to retain this relationship, we are using the Patient ID field to hold the unique&nbsp;identifier for the case or diagnosis. For each case, there is a field named \u201cRegistry Patient Identifier\u201d which is a unique patient identifier and allows users to determine if a patient has multiple cases or samples in cBioPortal. While using cBioPortal, if you encounter records where the Registry Patient ID&nbsp;repeats or if a cohort reports more than occurrence of a Registry Patient ID, this is an indicator that a patient&nbsp;has more than one diagnosis or sample.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Data Dictionary Demographic and clinical data are provided by the Kentucky Cancer Registry which is part of the National Cancer Institute\u2019s Surveillance, Epidemiology and End Results (SEER) Program and the Centers for Disease Control and Prevention National Program of Cancer Registries (NPCR) Program. Field Description Reference Patient ID Unique identifier for referring to a patient [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"templates\/template-full-width.php","meta":{"footnotes":""},"class_list":["post-4","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/pages\/4","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/comments?post=4"}],"version-history":[{"count":6,"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/pages\/4\/revisions"}],"predecessor-version":[{"id":32,"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/pages\/4\/revisions\/32"}],"wp:attachment":[{"href":"https:\/\/wp.kcr.uky.edu\/cbioportal\/wp-json\/wp\/v2\/media?parent=4"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}